baby=priceless

It is awful that money plays a role in so many decisions in our lives. Money can be the root of a lot of good….and a lot of bad. Infertility is expensive. I have had people tell me “well, you know…kids are expensive”. This, we realize. But if you have not struggled with infertility, you didn’t struggle with these type of expenses before you had your child. (note: we have not endured the bottom three…..yet).

  • A D&C after a miscarriage is about $6k….we’ve had two in the past year (partially paid for by insurance)
  • Chromosomal testing of your baby that you lost: $2300-we’ve done this twice. (not paid by insurance)
  • Chromosomal testing of parents: about $2k (not paid by insurance)
  • Genetic counseling: $500 (paid 50% by insurance)
  • Fertility specialist consultation: $75-$150 each visit (not paid by insurance). And yes, phone calls cost-but thank God phone calls are an option!
  • Pelvic MRI: $2k (paid partially by insurance)
  • Fertility testing (HSGs, ultrasounds, blood work, hystersonograms, etc): in the thousands and NOT paid by insurance.
  • IUI: $500 (not paid by insurance)
  • Laparoscopic myomectomy with morcellation/endometriosis removal: $75k (praise the LORD for insurance-mostly paid for!!!!)
  • Fertility medications: $500 (not paid by insurance)
  • Missed wages for time off for both Mother and Father: A LOT.
  • Travel for above testing, appointments, surgeries (gas, hotels, food): A LOT.
  • IVF: $31k and $7k more for each additional attempt (this is going to a reputable facility that will do testing of your embryos before implantation). If for some reason they cannot use my eggs, this goes up to $44k initially instead of the $31k (not paid by insurance).
  • Surrogacy: $100-150k
  • Adoption: $36-52k (it can be done cheaper but the wait will likely be longer. These amounts are from the two agencies that if we were to proceed with adoption, we would likely utilize).

Amazing, isn’t it. These are costs before you bring your baby home….then there are the diapers, baby furniture, clothes, college, weddings!!! =) Would we do anything different? Absolutely not. Would we do it all again? Absolutely. Do we regret the money we have had to come up with? No, no, and no. Otherwise, we would be living with an even bigger “what if” in our lives. “What if we had tried _____”….”what if we saw Doctor _____”….”what if we had gone to a different city”. So far we will never say “what if”-because we did.

The question for us currently is “what now?”. As you can see the cost of adoption and surrogacy is absolutely nothing to take lightly and no matter what route we go will dramatically affect us financially. No matter how we try to look at it. Any of the bottom three things listed are overwhelming financially and we aren’t even sure if they are doable. Of course, just like with anything, there is a loan for EVERYthing, including babies! Is this how we want to start our family, though? In an amount of debt that is life-changing and will certainly affect the lifestyle you provide for your child?

But, ultimately our (future) family is worth it.

Please continue to pray for us to know what direction He wants us to go in and for insight on how to possibly finance upcoming steps we may take.

Let me leave you with one last thought:

Having a baby in our arms: PRICELESS

 

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over the edge

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Yesterday I received a phone call that literally sent me over the edge. I feel like we have been hanging on by our fingernails, quite literally and it takes very simple, silly things to break us down. Some of the things are wonderful things but they still trigger the floodgates to open. For instance Adam received a beautiful text from our Niece stating that they sang Noel in church on Sunday and she thought of our Noelle the whole time. He started crying. But, it was a good cry. Still, though emotion is emotion and right now we are emotionally exhausted. 

We made a very important decision about ten days ago. I  have been very forthcoming about our looking into the adoption process and starting this, etc. We also decided to look into freezing my eggs-before they age any further! Gah! I thought 38 was the new 20, isn’t it?! The reality is, though that with each of my birthday’s, the risk of issues increases quite tremendously. My birthday is in June.

At any rate, we called and scheduled a phone consult with our fertility specialist in Denver to discuss this with him. Our appointment is Thursday. His nurse called me yesterday, though asking what type of testing they did on Lainey when we had our D&C. What type of chromosomal testing, that is. It was at this point that I started having some flashbacks of something being said to us last year before the D&C where we lost Noelle. I (think) the OB that did that procedure discussed with us doing a special test on her at the time that required them to draw my blood as well. The whole point is to be sure that if it is a female baby, that it is truly the baby’s chromosomes that you are seeing and not the Mama’s. If the baby and the Mama’s tissue do not get separated appropriately, you may get a false report of normal female chromosomes. No discussion like this took place before Lainey’s D&C. The correct test was not done-meaning there is a 29-58% chance it was actually my DNA that was looked at, not the baby’s! This thought is enough to….well, send us over the edge. Fortunately we can still have the correct testing done for the low, low price of $2300 (insurance will NOT pay). Of course we will pay it and we will know in about a week.

Just the thought that maybe there wasn’t a Lainey. Maybe there was a little boy. Or, maybe it was Lainey but her chromosomes were, in fact, not normal. Does any of this make a difference in anything? No and I realize this but it still feels awful. It feels like our first two babies all over again. Noelle’s loss was not less painful by any means but it really helps to have a picture of your baby, whether it be a little boy or girl, in your mind. And, to have a name to think of when you daydream.

I just hate this. This roller coaster we are riding on. The discussions we are having to have, the feelings we are experiencing. Quite honestly, it sucks and if I used bad words, this whole post would be profane.

Adam says if it was a boy, God has things covered and is calling him Lane! Ha!

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what to do (or not do) if a loved one or friend suffers from infertility/miscarriage

note: After I wrote this I stopped and looked back at the words on the page. Amazingly I think the title could simply be “what to do (or not do) if a loved one or friend is suffering from _________”. Almost everything written below can be translated to multiple situations.

Everyone means well. I believe they honestly do. I do not believe people do things out of malice. With that said, there are some things that have definitely touched us and others that have stung just a little throughout our journey. The most important thing to remember is that this is a daily battle for those that are suffering from this. Everywhere they look they will see a reminder of “their problem”. Whether it be the pregnant actress on stage at Rock of Ages or the child in the cart in front of them in line at Walmart. And, it doesn’t just go away, either. It never will. This is especially true if they were able to get pregnant and then lost their baby. And, it was a baby to them. No matter how far along they were in their pregnancy, it was a very real baby to them. Please remember this. And, it seems to hurt even more if they never find out why they lost their baby-or if it was a boy or a little girl. Not a single day will go by in their lives that they will not somehow think about their child and what would have been, what could have been. Not. A. Single. Day.

I have overheard people talk about other women like myself (not about myself, praise God), saying things like “she was barely pregnant, I don’t know why it is such a big deal”, or “it is so weird that they named the baby”. Please remember that if you haven’t experienced this, if you haven’t walked a mile in our shoes, all you need to do is simply have respect.

You don’t need to know what to say. There are no words. In fact, simply saying that is enough. But, please don’t withdraw from us. Surround us with your love. Whether it be through a mailed greeting card, a text or a voice mail just saying “hey, I’m thinking of you and love you”. With Lainey there was someone that seemed to always be calling, even though I didn’t answer. They would always leave a message saying that I didn’t need to call back but they wanted me to know that they loved me. Going to the mailbox and finding a card that said “we are thinking of you” means so much. Remember the anniversary day of the loss. Someone sent me a message on December 15 about Noelle. In my little mind, only Adam and I were thinking of her that day so it meant the world that she was real to them, too. Bring them a meal. As I have mentioned previously, just making sure we were fed in those first few days was a chore.

There are other things (that cost money) that you can do also. I received a bracelet after my first baby that had the intended birth month stone, the month of conception birth stone and the month of loss birth stone. It was so touching. After Noelle, I received a necklace from an old patient/friend that was a forget-me-not flower holding all three birth stones of my babies. Beautiful. Send some flowers. It doesn’t have to cost much but it will brighten a dreary spot in their day. Give a book that you think may inspire (or distract!) them. Recently a patient/friend gave us a very simple but very wonderful gift (unbeknownst to her!) and that was a Christmas ornament honoring Lainey. She didn’t even know we had ornaments for all of our other babies. Put together a care package of sorts. Whether it be bath stuff or sweet treats. Any little thing says “hey-I thought of you”.

Pray for us. Pray for peace and guidance and understanding. One of the most beautiful things that we got after Lainey was the post card from a church in Florida that they were praying for us-it meant that someone thousands of miles away was thinking of us. Simply love on us, hug on us and let us cry. Don’t ask what is wrong. Know what is wrong. Sometimes we just need to not be alone when we are crying. Believe me, most of the crying is done behind closed doors but there are times that we just need to be held and allowed to sob.

Don’t say “it happened for a reason”. Don’t say “it will happen when the time is right”. Don’t say “just relax and it will happen-that’s what always happens!”. Don’t bring up adoption….unless we do first. Don’t say “you have lots of time” (to us it feels like we are running out of time). Don’t say “stop trying-that is when it will happen!”. Don’t tell us to pray about it. We likely already are. When we are taking handfuls of prescribed medications to either get pregnant or to stay pregnant, don’t say “are you sure that is safe and what you should be doing?”. We certainly aren’t enjoying choking down these medications.

Be empathetic. Be sincere. Again, saying there are no words or I am sorry truly is enough. I have taken care of dying patients for a dozen years and have learned that when I give them bad news the best thing I can say is “I am so sorry” and hold their hand, hug them and for some, I may even pray with them. Praying while holding their hand that God helps them through this time, gives them peace and strength to get through today. For we are taking it one hour at a time or one day at a time and that is what we need. Peace and strength.

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