what to do (or not do) if a loved one or friend suffers from infertility/miscarriage

note: After I wrote this I stopped and looked back at the words on the page. Amazingly I think the title could simply be “what to do (or not do) if a loved one or friend is suffering from _________”. Almost everything written below can be translated to multiple situations.

Everyone means well. I believe they honestly do. I do not believe people do things out of malice. With that said, there are some things that have definitely touched us and others that have stung just a little throughout our journey. The most important thing to remember is that this is a daily battle for those that are suffering from this. Everywhere they look they will see a reminder of “their problem”. Whether it be the pregnant actress on stage at Rock of Ages or the child in the cart in front of them in line at Walmart. And, it doesn’t just go away, either. It never will. This is especially true if they were able to get pregnant and then lost their baby. And, it was a baby to them. No matter how far along they were in their pregnancy, it was a very real baby to them. Please remember this. And, it seems to hurt even more if they never find out why they lost their baby-or if it was a boy or a little girl. Not a single day will go by in their lives that they will not somehow think about their child and what would have been, what could have been. Not. A. Single. Day.

I have overheard people talk about other women like myself (not about myself, praise God), saying things like “she was barely pregnant, I don’t know why it is such a big deal”, or “it is so weird that they named the baby”. Please remember that if you haven’t experienced this, if you haven’t walked a mile in our shoes, all you need to do is simply have respect.

You don’t need to know what to say. There are no words. In fact, simply saying that is enough. But, please don’t withdraw from us. Surround us with your love. Whether it be through a mailed greeting card, a text or a voice mail just saying “hey, I’m thinking of you and love you”. With Lainey there was someone that seemed to always be calling, even though I didn’t answer. They would always leave a message saying that I didn’t need to call back but they wanted me to know that they loved me. Going to the mailbox and finding a card that said “we are thinking of you” means so much. Remember the anniversary day of the loss. Someone sent me a message on December 15 about Noelle. In my little mind, only Adam and I were thinking of her that day so it meant the world that she was real to them, too. Bring them a meal. As I have mentioned previously, just making sure we were fed in those first few days was a chore.

There are other things (that cost money) that you can do also. I received a bracelet after my first baby that had the intended birth month stone, the month of conception birth stone and the month of loss birth stone. It was so touching. After Noelle, I received a necklace from an old patient/friend that was a forget-me-not flower holding all three birth stones of my babies. Beautiful. Send some flowers. It doesn’t have to cost much but it will brighten a dreary spot in their day. Give a book that you think may inspire (or distract!) them. Recently a patient/friend gave us a very simple but very wonderful gift (unbeknownst to her!) and that was a Christmas ornament honoring Lainey. She didn’t even know we had ornaments for all of our other babies. Put together a care package of sorts. Whether it be bath stuff or sweet treats. Any little thing says “hey-I thought of you”.

Pray for us. Pray for peace and guidance and understanding. One of the most beautiful things that we got after Lainey was the post card from a church in Florida that they were praying for us-it meant that someone thousands of miles away was thinking of us. Simply love on us, hug on us and let us cry. Don’t ask what is wrong. Know what is wrong. Sometimes we just need to not be alone when we are crying. Believe me, most of the crying is done behind closed doors but there are times that we just need to be held and allowed to sob.

Don’t say “it happened for a reason”. Don’t say “it will happen when the time is right”. Don’t say “just relax and it will happen-that’s what always happens!”. Don’t bring up adoption….unless we do first. Don’t say “you have lots of time” (to us it feels like we are running out of time). Don’t say “stop trying-that is when it will happen!”. Don’t tell us to pray about it. We likely already are. When we are taking handfuls of prescribed medications to either get pregnant or to stay pregnant, don’t say “are you sure that is safe and what you should be doing?”. We certainly aren’t enjoying choking down these medications.

Be empathetic. Be sincere. Again, saying there are no words or I am sorry truly is enough. I have taken care of dying patients for a dozen years and have learned that when I give them bad news the best thing I can say is “I am so sorry” and hold their hand, hug them and for some, I may even pray with them. Praying while holding their hand that God helps them through this time, gives them peace and strength to get through today. For we are taking it one hour at a time or one day at a time and that is what we need. Peace and strength.

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lost identity

Our beautiful niece sent this to me. This video is perfect. It is us, only this couple is light years ahead of us as far as healing goes. I pray someday we make it as far as they have.

It is about broken dreams and somehow coming to terms with them. The Husband says at one point the perfect thing, “someone that is wrapped up in a broken dream is someone with a lost identity”. I definitely feel like I don’t know who I am right now. My identity is lost. How do we break free from this broken dream that we had? He references that even though we had a dream to be parents, we need to realize that there are other dreams we can have. We shouldn’t let our broken dream define us. It is so tough because this has been our focus for years….getting pregnant, going through all of the motions the doctors have told us to, etc. This is a chapter in our life that we need to close. But, how? I don’t know how to do this….yet. I pray for new dreams. New attainable and realistic dreams.

At what point do we stop all together? Should we even be pursuing adoption or considering surrogacy. Does God want us to be done with this entire idea in our life? I just struggle with this thought. Surely He wants us to multiply and to glorify Him by raising a child up in His image and teaching them to worship Him. Or, is this just another wish but not actual reality?

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life goes on

wekosh-daily-quotes-life-goes-on

As with any major event in your life, tragic or happy-life does go on. With all of our babies, (with Lainey especially as we knew what this 4th loss meant for us) it felt like time stopped. Time stood still. But the reality is that life did go on….for everyone else it felt.

Bills needed to paid. Our fur babies needed fed. Arrangements for both of our jobs needed to be handled. People still got sick, patients still needed to be seen. Electronics and signs still broke down and businesses continued to call Adam. We still needed to feed ourselves….something….and let me tell you, many days it was just a bowl of cereal. Within our grief, we were stuck-never wanting to leave the house again. Not wanting to answer the phone, reply to text messages or emails. Not wanting to even go get the mail, all while looking out the window and seeing cars still driving by. While logging in to facebook and seeing others functioning and continuing on with their lives. It’s a surreal feeling that until you experience it, you can’t quite completely get it.

Life goes on, for us also. It had to. Like I said, bills needed paid, our fur babies (and us) needed fed, patients needed seen and signs needed repair. Life may be going on, but it is a new life. Dreams we had are gone and we are trying our best to navigate this different life. I’ve only had one day since December 2nd that I did not cry tears of grief and that one day, I still cried but it was for a good reason actually. I may not have a baby in my arms nor carried a baby for nine months, but my hormones seem to not know this. With all four of our babies I could feel it. Could feel them raging and changing. With a history of depression already, it can be an awful feeling-a suffocating feeling. I have become an even bigger believer of the statistics that state depression is the number one complication of pregnancy. I always be sure to tell my patients this and their partners also to watch closely because it can happen. Very easily.

It is like part of my body knows I was pregnant, thus all of the hormone changes but the other part of my body is like the rest of the world. It has just gone on…like there was no Lainey. With all four of my babies I can say that within 28-32 days after losing the baby I cycled, right on time as if those babies never were even in my womb. It’s a painful reminder again that ours is an unknown problem. My body works. It really does. I am good at getting pregnant, just terrible at staying pregnant. 

Such a conflicting reality.

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